Episode 6

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Published on:

28th Apr 2024

Episode 6: Dental Issues and Hyperparathyroidism

In episode 5 Lisa Marie Shares her humiliating and traumatic visits to the dentist and specialist dental hospital, highlighting once again dismissive attitudes and making Lisa Marie feel entirely responsible for her dental issues.

Importantly Lisa Marie highlights the need to be aware of the relationship between hyperparathyroidism and how early intervention may be the key to preserving long-term dental health.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

THE JOURNAL OF THE BRITISH ASSOCIATION OF DENTAL NURSES

https://bdnj.co.uk/2021/05/06/hyperparathyroidism-what-to-know/

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Transcript
Lisa Marie: [:

My dentist would have been aware of the extent of the damage when they did my checkup as it was clear from the extracted tooth that there were visible signs of deterioration on the visible tooth as well as the root. This dentist chose not to remove it then and as such I had several months and years of pain on top of my existing symptoms.

It

[:

didn't really occur to me until seeing my dental x ray that my teeth may be affected by this disease. I would have ideally liked to have had a dental implant but this will not be possible until the bone density is much improved and at this point I'm not entirely sure that is possible. Following on from that, not many dentists have an awareness.

of hyperparathyroidism and dental related issues from it. And so it has been a battle to overcome, even to a visit to a specialist dental hospital in the UK turned in to be one of the most traumatic and humiliating visits. Being told that more or less all of my dental issues were all of my own doing.

And that pain is not a reason to floss less, but to push past the pain and carry on. This,

[:

to me, demonstrates someone who hasn't experienced the debilitating effect of hyperparathyroidism, or how painful the teeth can become. And that even brushing your teeth or eating food can feel like an assault on the senses and the pain receptors. In addition to this, whilst this particular dentist was aware of hyperparathyroidism, they strongly suggested that these issues could only be created by having the disease long term, over 10 years was the figure that was stated, to which I instantly replied, I've had this disease for over 10 years.

It's probably nearer 19 now. Add to that my family history of diabetes, also known to cause dental issues, even if you're not diabetic and you're up against it two fold. Both of these issues were dismissed and I was made to feel so

[:

ashamed and that somehow I had neglected my teeth, which is not helpful when you're trying to move forward and,

appropriately deal with your dental issues. When I went in for my first dental treatment, I was met with more patronising behaviour and more criticism. of what I was doing wrong. No one needs to feel like this.

The whole experience was so traumatic. Being in hospital booths in a dental hospital with little to no screening and knowing the person in the next booth to me could hear all of my personal detail and information. It was just enough for me to say I can't return again. I fed my experience back to the hospital and have since decided to find a dentist so I can feel more comfortable.

and safe with. I felt it important to highlight these issues as I have , and hopefully raise awareness for all patients who've had issues with their teeth. So

[:

if there is anything that you or your dentist can do to monitor this and take preventative steps, then I think that's a good thing and I would encourage anyone to do so.

Raising awareness of this disease with all areas of medicine, family, friends, and the wider public will help us all spot the signs earlier, get diagnosed sooner, and instigate better long term outcomes for patients suffering from hyperparathyroidism. Thank you for listening. I hope you will join me in Episode 7 where we discuss crossover symptoms in relation to hyperparathyroidism.

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About the Podcast

Hyperparathyroidism: A Patient's Perspective
Lisa Marie candidly shares her personal journey with the disease, providing invaluable insights from a patient's perspective. Lisa Marie delves into the symptoms, challenges, and unique experiences associated with hyperparathyroidism, shedding light on its impact on daily life.

This is not a podcast about thyroid problems, underactive, overactive or thyroid cancers. This is a podcast about parathyroid disease, relating to the 4 tiny glands that sit behind your thyroid gland.

Throughout the podcast, listeners gain a deep understanding of the diverse symptoms that accompany hyperparathyroidism. Lisa Marie discusses the physical manifestations, such as fatigue, muscle weakness, and bone pain, that can significantly disrupt a person's quality of life. She emphasizes the importance of recognising these symptoms and seeking medical attention for proper diagnosis and treatment. Please see the RESOURCES guide below.

One of the lesser-known aspects of hyperparathyroidism that Lisa Marie explores is its effects on dental health. She shares her own struggles with dental issues, including bone loss, which are common complications of the condition. By sharing her experiences, she aims to raise awareness about the importance of dental care in managing hyperparathyroidism and improving overall well-being.

Hair loss is another topic that Lisa Marie bravely addresses in the podcast. She discusses how hyperparathyroidism can contribute to hair thinning and loss, highlighting the emotional toll it can take on individuals already grappling with the challenges of the disease. Through her candid storytelling, she offers empathy and support to listeners who may be experiencing similar hair-related concerns.

Ultimately, "Hyperparathyroidism: A Patient's Perspective" provides a platform for patients like Lisa Marie to share their journeys, fostering understanding, empathy, and solidarity within the hyperparathyroidism community. By sharing her story, Lisa Marie hopes to empower others to advocate for their health, seek support, and navigate the complexities of living with hyperparathyroidism with resilience and hope.

ABBREVIATIONS:

HPT - Hyperparathyroidism.
nHPT - Normocalcemic Hyperparathyroidism.
PTH - Parathyroid Hormone Level.
ng/L - Blood chemistry measurement.
MP - Member of Parliament -UK

CLARIFICATIONS:
Hyperplasia verses single adenoma.

Hyperplasia affects all four glands and the glands become enlarged.
A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES
The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. It also includes a link to a well-organised and run patietn to patient support group.

Hyperparathyroidism
https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support and Information - Patient-to-Patient Support Group
https://www.facebook.com/groups/406980976340533

NICE Guidelines
https://www.nice.org.uk/guidance/ng132

Fibromyalgia
https://www.nhs.uk/conditions/fibromyalgia/symptoms/
https://www.fmauk.org/

Menopause
https://www.nhs.uk/conditions/menopause/
https://www.newsonhealth.co.uk/

Thyroid Function
https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/
https://www.btf-thyroid.org/what-is-thyroid-disorder

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

About your host

Profile picture for Lisa Marie Olson

Lisa Marie Olson

I am Lisa Marie, a patient with hyperparathyroidism and more specifically a variation of the disease called normocalcemic hyperparathyroidism with hyperplasia. Hyperparthroidism, is NOT thyroid disease.

I have been navigating this disease for what may be 19 years, a large proportion of my 23-year marriage and my 25-year relationship with my husband.

I am extremely passionate about raising awareness of this often debilitating disease, the damage it can cause if left undiagnosed and untreated, by sharing my journey here and where ever I can.