Episode 1

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Published on:

23rd Apr 2024

Episode 1: What is Hyperparathyroidism?

Lisa marie shares a basic overview of what hyperparathyroidism is.

ABBREVIATIONS:

  • HPT - Hyperparathyroidism.
  • nHPT - Normocalcemic Hyperparathyroidism
  • PTH - Parathyroid Hormone Level.

CLARIFICATIONS:

Hyperplasia verses single adenoma.

  • Hyperplasia affects all four glands and the glands become enlarged.
  • A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information.

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support & Information - Patient to Patient Support Group

https://www.facebook.com/groups/406980976340533

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Transcript
Lisa: [:

It's commonly known as parathyroid disease, and parathyroid disease might just be that little easier to roll off the tongue. But parathyroid disease relates to the four parathyroid glands that sit behind the thyroid in your neck and they should be the size of a grain of rice. These glands produce the parathyroid hormone level that determines the level of calcium within your blood.

If one or more of these glands become overactive, then it's possible that Other systems in the body can be effective

[:

causing a variety of symptoms. There are also many different types of hyperparathyroidism and we'll discuss the different types of hyperparathyroidism in episode 2.

The next thing to be aware of is to observe the symptoms. They can be very severe, and it can be that your quality of life is profoundly affected. Some of the main symptoms that patients commonly report can include the following. Anxiety, depression, extreme fatigue. memory problems, poor concentration, personality changes, mood swings, sleep problems, irritability, hair loss, loss of libido, headaches, hot flashes, or flushing.

Weight loss or weight gain, loss of appetite, nausea,

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vomiting, heartburn, constipation, high blood pressure, heart palpitations, high or low calcium, breaking teeth, dental issues, itchy skin, kidney stones,, frequent urination extreme thirst, osteoporosis, fractures, joint or bone pain, muscle pain, muscle weakness, balance issues, or vertigo, to name but a few.

If you have this disease, your symptoms may well look very similar. You may have some that aren't on that list.

So what to do if you think that you might have this? Well, The first and foremost thing really is to ask your doctor, your GP if you're in the UK, to run some tests. Now the tests that they'll need to run are quite important and it's important that you get this trio of

[:

tests done, the basic trio of tests done, from the same blood draw.

Now this was advised by To me by my surgeon who also advised to have the bloods taken first thing in the morning and fasting. They are calcium. Now, calcium could be serum calcium plus ionized calcium parathyroid hormone level or PTH as we refer to it. Vitamin D. Additional tests could be cretinine and phosphorate.

But the key three that are used commonly in the UK, or should be used commonly UK, for diagnostic purposes, are calcium, parathyroid hormone level, and vitamin D. Without those three basic tests, it is almost impossible to get an accurate overview of what's going on and whether. Or not, you have the disease.

From there, you need to be

[:

referred to an endocrinologist if you're in the UK. And that endocrinologist should do some further retesting. And if hyperparathyroidism is suspected, Should then send you for some scans, some imaging scans, and there are a variety of different imaging scans which I'll cover in a later episode.

But that's the basics of hyperparathyroidism, and those are the basic tests that anyone who thinks that they might have this disease, needs to ask their GP or medical professional to do for them. In episode two, we'll cover briefly, and not in detail, some of the other variations and presentations of hyperparathyroidism.

I hope you will join me there. Thank you for listening.

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Show artwork for Hyperparathyroidism: A Patient's Perspective

About the Podcast

Hyperparathyroidism: A Patient's Perspective
Lisa Marie candidly shares her personal journey with the disease, providing invaluable insights from a patient's perspective. Lisa Marie delves into the symptoms, challenges, and unique experiences associated with hyperparathyroidism, shedding light on its impact on daily life.

This is not a podcast about thyroid problems, underactive, overactive or thyroid cancers. This is a podcast about parathyroid disease, relating to the 4 tiny glands that sit behind your thyroid gland.

Throughout the podcast, listeners gain a deep understanding of the diverse symptoms that accompany hyperparathyroidism. Lisa Marie discusses the physical manifestations, such as fatigue, muscle weakness, and bone pain, that can significantly disrupt a person's quality of life. She emphasizes the importance of recognising these symptoms and seeking medical attention for proper diagnosis and treatment. Please see the RESOURCES guide below.

One of the lesser-known aspects of hyperparathyroidism that Lisa Marie explores is its effects on dental health. She shares her own struggles with dental issues, including bone loss, which are common complications of the condition. By sharing her experiences, she aims to raise awareness about the importance of dental care in managing hyperparathyroidism and improving overall well-being.

Hair loss is another topic that Lisa Marie bravely addresses in the podcast. She discusses how hyperparathyroidism can contribute to hair thinning and loss, highlighting the emotional toll it can take on individuals already grappling with the challenges of the disease. Through her candid storytelling, she offers empathy and support to listeners who may be experiencing similar hair-related concerns.

Ultimately, "Hyperparathyroidism: A Patient's Perspective" provides a platform for patients like Lisa Marie to share their journeys, fostering understanding, empathy, and solidarity within the hyperparathyroidism community. By sharing her story, Lisa Marie hopes to empower others to advocate for their health, seek support, and navigate the complexities of living with hyperparathyroidism with resilience and hope.

ABBREVIATIONS:

HPT - Hyperparathyroidism.
nHPT - Normocalcemic Hyperparathyroidism.
PTH - Parathyroid Hormone Level.
ng/L - Blood chemistry measurement.
MP - Member of Parliament -UK

CLARIFICATIONS:
Hyperplasia verses single adenoma.

Hyperplasia affects all four glands and the glands become enlarged.
A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES
The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. It also includes a link to a well-organised and run patietn to patient support group.

Hyperparathyroidism
https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support and Information - Patient-to-Patient Support Group
https://www.facebook.com/groups/406980976340533

NICE Guidelines
https://www.nice.org.uk/guidance/ng132

Fibromyalgia
https://www.nhs.uk/conditions/fibromyalgia/symptoms/
https://www.fmauk.org/

Menopause
https://www.nhs.uk/conditions/menopause/
https://www.newsonhealth.co.uk/

Thyroid Function
https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/
https://www.btf-thyroid.org/what-is-thyroid-disorder

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

About your host

Profile picture for Lisa Marie Olson

Lisa Marie Olson

I am Lisa Marie, a patient with hyperparathyroidism and more specifically a variation of the disease called normocalcemic hyperparathyroidism with hyperplasia. Hyperparthroidism, is NOT thyroid disease.

I have been navigating this disease for what may be 19 years, a large proportion of my 23-year marriage and my 25-year relationship with my husband.

I am extremely passionate about raising awareness of this often debilitating disease, the damage it can cause if left undiagnosed and untreated, by sharing my journey here and where ever I can.