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Published on:

22nd Apr 2024

Introduction to 'Hyperparathyroidism: A Patient's Perspective'

Lisa Marie shares an introduction to the upcoming episodes, what the podcast is and is not about, as well as the importance of seeking medical advice from a qualified medical professional. This is not a podcast about thyroid problems, underactive, overactive, or thyroid cancers.

RESOURCES

The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, the NHS website, and curated guides from my support group. Please click on the links below for more information.

Hyperparathyroidism Support & Information Facebook Group

https://www.facebook.com/groups/406980976340533

Hyperparathyroidism

https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

NICE Guidelines

https://www.nice.org.uk/guidance/ng132

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

Transcript
Lisa: [:

to either a diagnosis or to rule it out. But, before we take a deep dive into that, there are a couple of things that I need to cover. The first is that this is not a podcast about thyroid problems. Underactive thyroid, overactive thyroid, or thyroid cancers. This is a podcast about parathyroid disease, relating to four tiny glands .

that are the size of a grain of rice that sit behind your thyroid gland. I also want to add a disclaimer that I am not in any way medically trained, that I am not providing medical advice,

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and the information I share is in no way a substitute for qualified medical advice. If you believe that you may have this disease, then you must seek the most appropriate medical advice.

The aim of this podcast is to help you navigate your way to the right medical support and diagnosis. Please join me in episode one, the basics of hyperparathyroidism.

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About the Podcast

Hyperparathyroidism: A Patient's Perspective
Lisa Marie candidly shares her personal journey with the disease, providing invaluable insights from a patient's perspective. Lisa Marie delves into the symptoms, challenges, and unique experiences associated with hyperparathyroidism, shedding light on its impact on daily life.

This is not a podcast about thyroid problems, underactive, overactive or thyroid cancers. This is a podcast about parathyroid disease, relating to the 4 tiny glands that sit behind your thyroid gland.

Throughout the podcast, listeners gain a deep understanding of the diverse symptoms that accompany hyperparathyroidism. Lisa Marie discusses the physical manifestations, such as fatigue, muscle weakness, and bone pain, that can significantly disrupt a person's quality of life. She emphasizes the importance of recognising these symptoms and seeking medical attention for proper diagnosis and treatment. Please see the RESOURCES guide below.

One of the lesser-known aspects of hyperparathyroidism that Lisa Marie explores is its effects on dental health. She shares her own struggles with dental issues, including bone loss, which are common complications of the condition. By sharing her experiences, she aims to raise awareness about the importance of dental care in managing hyperparathyroidism and improving overall well-being.

Hair loss is another topic that Lisa Marie bravely addresses in the podcast. She discusses how hyperparathyroidism can contribute to hair thinning and loss, highlighting the emotional toll it can take on individuals already grappling with the challenges of the disease. Through her candid storytelling, she offers empathy and support to listeners who may be experiencing similar hair-related concerns.

Ultimately, "Hyperparathyroidism: A Patient's Perspective" provides a platform for patients like Lisa Marie to share their journeys, fostering understanding, empathy, and solidarity within the hyperparathyroidism community. By sharing her story, Lisa Marie hopes to empower others to advocate for their health, seek support, and navigate the complexities of living with hyperparathyroidism with resilience and hope.

ABBREVIATIONS:

HPT - Hyperparathyroidism.
nHPT - Normocalcemic Hyperparathyroidism.
PTH - Parathyroid Hormone Level.
ng/L - Blood chemistry measurement.
MP - Member of Parliament -UK

CLARIFICATIONS:
Hyperplasia verses single adenoma.

Hyperplasia affects all four glands and the glands become enlarged.
A single adenoma usually a benign (non-cancerous) tumour of the gland.

RESOURCES
The information shared in this podcast has been provided by several sources. These include outcomes from personal consultations with medical professionals, my own experiences, published research by expert medical professionals, and the NHS website. Please click on the links below for more information. It also includes a link to a well-organised and run patietn to patient support group.

Hyperparathyroidism
https://www.nhs.uk/conditions/hyperparathyroidism/

Normocalcemic Hyperparathyroidism
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7923978/

Hyperparathyroidism Support and Information - Patient-to-Patient Support Group
https://www.facebook.com/groups/406980976340533

NICE Guidelines
https://www.nice.org.uk/guidance/ng132

Fibromyalgia
https://www.nhs.uk/conditions/fibromyalgia/symptoms/
https://www.fmauk.org/

Menopause
https://www.nhs.uk/conditions/menopause/
https://www.newsonhealth.co.uk/

Thyroid Function
https://www.nhs.uk/conditions/underactive-thyroid-hypothyroidism/
https://www.btf-thyroid.org/what-is-thyroid-disorder

DISCLAIMER: Lisa Marie is not in any way medically trained, she is not providing medical advice, and the information that is shared is in no way a substitute for qualified medical advice. If you believe you may have this disease, then you must seek the most appropriate medical advice, this podcast aims to help you navigate your way to the right medical support and diagnosis.

About your host

Profile picture for Lisa Marie Olson

Lisa Marie Olson

I am Lisa Marie, a patient with hyperparathyroidism and more specifically a variation of the disease called normocalcemic hyperparathyroidism with hyperplasia. Hyperparthroidism, is NOT thyroid disease.

I have been navigating this disease for what may be 19 years, a large proportion of my 23-year marriage and my 25-year relationship with my husband.

I am extremely passionate about raising awareness of this often debilitating disease, the damage it can cause if left undiagnosed and untreated, by sharing my journey here and where ever I can.